Saturday, April 28, 2018

Frontotemporal dementia update


My husband Randy Thompson has
behavioral variant frontotemporal dementia
If you are new to my blog, you can read his story HERE.


  • I love seeing him sitting out on our patio. And yes, these days are numbered as the temps are rising here in Phoenix
  • he's always saying "I think you're going to make me chicken with tomato sauce"
  • I have never made such a dish 😊
  • he recently lost the 20# he gained 4 years ago after his FTD diagnose
  • hard to believe it was 4 years ago this month
  • but the symptoms go back to 2011
  • love the art pieces he brings home from his adult day care
  • started touring memory care facilities. So hard to imagine that one day...
  • he whispered "I love you" the other day. Out of the blue
  • he's unable to carry on a conversation, instead repeats everything I say
  • so as you can imagine, it was a big deal
  • he is totally oblivious to the guys that are remodeling our master bathroom
  • he loves taking our dog Koda for walks
  • he repeats over & over "That's Koda!" the entire time we're walking
  • Randy recently ate an entire bag of organic dog treats overnight, that I had emptied in a jar on the counter
  • they were not the usual 99 Cent store hard biscuit dog treats
  • so he thought they were people treats
  • I was pretty freaked out... but able to laugh about it now
  • such an unexpected, heartfelt reaction to meeting his new granddaughter Cora Jane
  • literally took my breath away as I captured the sacred moment 
  • my beautiful Cora Jane. Our 6th grandchild. Mimi & Pop Pop are so blessed.
  • love my letter board that I now call my memory board
  • scripture verses on the board that Randy loves reading every day
  • my latest memory verse ~ Romans 12:12
  • Randy just shaved his beard. Himself! (with my prompting) A miracle! Usually the neighbor has to hold his arms while I do it.
  • ok, it ain't pretty, but hey, I'll take it! 
  • attended my first dementia workshop this month. So helpful, informative... and emotional
  • Randy is still so sweet... never angry, sad, depressed or argumentative 
  • I think it's because our life is very quiet, routine and predictable. 
  • which makes him feel safe, secure and happy
  • my dear friend Alice captured this rare moment while visiting from PA
  • Love my husband so much... yet miss him terribly.