Tuesday, December 23, 2025
Thursday, September 11, 2025
Frontotemporal Dementia Caregivers
Thank you Emma Willis. You are an answer to our prayers.
While I am so sad that Bruce Willis has Frontotemporal dementia, I knew his diagnosis would bring worldwide awareness to FTD.
And now Emma's book The Unexpected Journey is going to have a profound impact on the lives of dementia caregivers around the world.
~ There are more than 11 million unpaid caregivers for those with dementia in the United States.~ Rosalynn Carter’s famous quote ~ There are only four kinds of people in the world ~ those that have been caregivers, those that are caregivers, those who will be caregivers, and those who will need caregivers.
~ 40 percent of dementia caregivers die before the ones they are caring for. It isn’t a disease or accident that takes these caregivers, but rather the sheer physical, mental and emotional toll of caring for someone with dementia.
- 20+ years ago, my husband and I were sitting around a table with friends at a backyard wedding reception. Everyone was asking Rick about his wife, who we could see surrounded by friends, celebrating the recent news that her cancer was in remission.
- Then one of Rick's friends asked him, "Rick, how are YOU doing?" Rick immediately started crying. No one had ever asked him that before.
- At that moment he felt seen, supported and safe to share his story as a caregiver.
- I will never forget hearing a voice in my mind say "Linda, remember what you just witnessed. Don't forget to ask the caregiver how they are doing." I haven't.
- Little did I know that one day I would be one.
- I also will never forget going to church soon after I had placed Randy in a memory care facility. Two dear women came up to me, expressing compassion for me, asking me how I was doing. I affirmed them by thanking them for asking me how I was doing.
- But one of them was crying and kept apologizing for the tears. I told her, "No, do not feel bad for crying, because at this moment, YOU are carrying the weight of my grief. I am not alone in feeling the full impact of my sorrow, because you have entered into my heartache". And you know what, I wasn't crying like I usually am... because she was even carrying my tears.
- Caregiving is lonely. Isolating. They don't know how to ask for help.
- So show up. Ask them how they are doing. Listen to their stories. Share the weight of their grief. Let them see your tears. Pray with them.
- And bring them a loaf of sourdough bread. 😊
- Love that I get to be Randy's caregiver (August 2016)
Tuesday, August 05, 2025
Randy Thompson Website
Tuesday, July 01, 2025
Waiting on the Lord
Monday, January 20, 2025
Mindful in 2025
Mindful in 2025.
That's my word. Being aware. Alert. Bearing in mind. Being attentive to.
Mindful Behavior means
maintaining a moment-by-moment awareness of our thoughts, feelings, bodily sensations, and surrounding environments, through a gentle, nurturing lens. (Love that!)
Mindfulness is
embracing God's promises. Living life fully. Being fully present.
Mindfulness is
accepting our experiences, in each moment, as a gift from God.
Mindfulness is
responding in a calm, intensional manner ~ acknowledging my emotions, labeling them, finding compassion and moving forward.
So of course God would take me through the process.
I have been writing in preparation for my husband Randy Thompson's new website. Plus editing 84 song lyrics off his old website. I was becoming more and more frustrated because nothing is as easy as I had hoped. By the time I was drowning in a puddle of tears I could see God was showing me how to be mindful in these moments.
So I acknowledged my emotions (anger, sadness, grief) as I stomped around the house, crying out to God. Then I was able to label it as being more about missing Randy than my lack of abilities, knowing he could do what I was doing blindfolded. Ok, I'm exaggerating. But still. I am technologically challenged. Then I gave myself grace. God's grace. To show myself compassion. To let go and let God. And move forward. Which is the hardest part. I'm good at beating myself up. Being the victim. Feeling stuck. Not accepting my limitations.
The task that pushed me over the edge?
I discovered Randy forgot a song on the Lyrics section of his website. That meant I had to listen to the song and write out the lyrics. No big deal. But this was after having to do it for two other songs he had omitted. By this time I was done, so over the whole process. I was mad at God, at Randy, for making this edit even harder. As I cried, God reminded me of the title of the song... Trust Me. How about listening to the words as you write out the lyrics. You guys... it was never about Randy forgetting to list the song. It was about 30 years later, in prep for the new website, that Randy's song Trust me would minister to me in a profoundly personal way. Oh Lord... you continue to love me and find ways to show you care deeply for me. It might feel lonely in this process of preserving Randy's legacy. But I am never alone. You are with me, using Randy's book and song lyrics to show Yourself so real to me. I trust You.


